MANAGEMENT OF HYPERPARATHYROIDISM (HPT) IN THE HYPERPARATHYROIDISM-JAW TUMOR SYNDROME (HPT-JT)

HPT-JT is a very rare cause of hereditary primary HPT, associated with a fibroma in the jaw. The exact prevalence remains unknown, with only 200 cases reported in the literature. HPT-JT is caused by mutations in the CDC73 gene (also known as the HRPT2 gene) and is inherited in an autosomal dominant pattern. HPT in the HPT-JT is usually due to single gland disease in the majority of patients (90 %). Selective parathyroidectomy during which only grossly enlarged parathyroid gland(s) is (are) removed is the treatment of choice. Intraoperative PTH monitoring is required to verify success of surgery. Parathyroid carcinoma is much more frequent among HPT-JT patients (15 – 20 %) compared to the patients with sporadic HPT (< 1 %). Radical parathyroidectomy which includes en bloc resection of the affected gland with adjacent tissues (thyroid lobe, muscles, etc) is required to maximize therapeutic results. Recurrent disease will be observed in a significant percentage of patients (~ 20 %) within the first 15 years following initial surgery. This is typically due to metachronous single gland involvement. Indications for reoperative surgery should be reevaluated. Accurate preoperative localization of the hyperfunctioning parathyroid parenchyma is mandatory before attempting reoperation in these patients.HPT-JT is often associated with uterus tumors (occurring in about 75 % of women with HPT-JT) and benign-malignant kidney lesions (most commonly cysts, but also Wilms tumor etc).

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